Does anyone else notice that after doing a day of an activity like going out with friends or family and the next day you feel horrible or your symptoms increase or show up again
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2. MS Symptoms
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You never know
I found out that MS symptoms can mimic anything. I had severe symptoms of a UTI that had become a kidney infection, but a trip to the ER determined no I did not..it was a flare up. I get UTI's pretty regularly because of a urology issue so I know what it's like. Urgency, pain in my sides and back. The ER doctor prescribed me a deadly dose of steroids and all I can say is thank goodness for pharmacists because my brain doesn't comprehend things very well and I would have taken it no questions asked. The pharmacist had plenty of questions thankfully. Now I will never know if something is wrong or just a flare up and it's just one more stressor on top of all the rest. This disease is so very confusing.
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Stephanie Guy
8月18日
It's maddening, isn't it? I had my son drive me to the ER earlier this year. I was terrified that I was having a stroke! Couldn't remember my son's FIL's name, couldn't spell a common, basic word, NO balance, weird vision issues, etc. Many tests later 2 different MRI's, CT, the works, they discharged me because the tests were ALL normal. But, you still have to check!
Balance
Balance issues sneak up on me more than anything else. Some days walking in a straight line feels like a legit task. Wild how symptoms can be so different day to day.
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Jim.foulton8
8月24日
Yeah, dealing with this too..trying to be patient. Some days are better than others. Focusing on the positive and giving myself the time I need. The better attitude I have (funnily enough), the better day I have.. breathing and meditating helps.
Anyone else have a symptom that's hard to explain to people who don't have MS?
Like trying to describe "MS hug" or brain fog to someone and just getting a blank stare back lol. Curious what symptoms you find hardest to put into words - and how you explain them (or don't).
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katiesugar
8月18日
The MS hug is a perfect example lol - I usually just say "imagine a blood pressure cuff around your ribs that never lets go" and people finally get the visual. Brain fog is the tough one for me though.
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Omg yess all the time. I can’t move from only go out one day out of the weekend. It takes about feo to recover. Right now I’m fighting fatigue as my infusion is tuning low