General MS Discussion

Hello -

Grateful for this community and what I've read in the posts below. I was diagnosed in 2022. Long story short, should have been diagnosed in 2012 and was labeled as a myelitis, then. Until this tired mom of 3 littles, under 5 at the time, was sick of the numbness/pain and fatigue I finally got seen and "lit" up my MRI as I was told.

We, as mothers tend to dismiss symptoms and I was a classic and not to mention being in medical/behavioral health field, so definitely did not get seen when I should have. Even though I understand the patho of all this, I can't seem to manage or tell a difference from a temp flare up due to stress or a relapse. Cant find an understanding of what are next steps to prevent another pseudo flare. I've quit my old job because physically it ju…

Hello, everyone. I am just joining after we reached out to the community contact, Nick. I have been living with M.S. for over fifteen years and had to take early retirement from my career in government after ten years of service. My husband, Kirk, is helping me to try to build a network and we are trying to do some fundraising (medical relief campaign). We have also been reaching out to some inspiring folks in the M.S. community, who have done or attempted some mountain ascents. We had climbed some peaks in the U.S. and hoping to attempt some mountains in the near future. I have been keeping up a daily training program to stay as strong as possible. Fitness has been important aspect of my life since my youth. We are not sure which of the different forums would be best place for further discussions and connections. We would…

Looking for MS podcast recommendations - any favorites out there?

There is some very exciting news to share we have heard through the grapevine! Plans are in motion for an MS center in Fairfield, Connecticut. This is a huge step forward for the MS community and something Fairfield county has needed for a long period of time. Having a dedicated center like this will create new opportunities for support, resources, and connection. More to come soon!