Living with MS often means adapting - sometimes in big ways, sometimes in small ones. Whatโs one adjustment youโve made in your daily life that has helped you manage MS better, and what advice would you give someone whoโs still figuring that out? Somebody asked me this the other day and I thought they were good questions ๐
Hi all, Iโm living MS in reverse and wondering if anyone else has a similar experience. I had brain cancer over 20 years ago and have to be scanned once a year because my type of brain cancer can recur. 14 years ago the doctors sent me to a MS specialist to rule out MS after seeing โspotsโ on my annual scan. It turns out that it was MS. So for 14 years (until this year), I havenโt had any major MS problems. This year I got a new lesion that is a jerk. Now Iโm trying to mentally figure out how to deal with the disease Iโve had for so long but I canโt find anyone who has a similar story. Is there anyone here who has been through something similar?
Thanks for sharing Ashley. I canโt help personally, but even after years of stability, a new lesion can really shake things up. Youโre definitely not alone, and the ms lifeย community is here to listen as you figure out how to handle MS all over again.
The NW Ohio MS Society chapter has sponsored Bike to the Bay for over 30 years, and I rode with them for 16 of those rides in the span of 18 years. ( Missed a couple due to MS problems). In the early 2000s, or late 1990s I began taking part in the ride not so much because of MS but because it is was a nice ride through farm country and near the lake plus being very well supported. Good SAG and service volunteers along route. I only had ever been acquainted with a couple of people who lived with MS. But thought good cause I could support. So rode right years in a row got to know organizers, and volunteers and really enjoyed participating and even got good at fundraising
2008 eight going to be my ninth year and signed up early for the ride and had beeโฆ
Thatโs an amazing story - the patience and creativity you put into that guitar is seriously inspiring. The dream-tailpiece moment is incredible, and itโs awesome that the guitar plays perfectly now.
I used to lead an MS Support group. Whenever a new person joined, at the 1st meeting, the group would discuss that all of MS is a series of adjustments. That EVERYTHING is do-able with adjustments. In our monthly meets, we almost always discussed suggestions for adjustments.