Inspire Project - University of Cambridge
We received this in the ms life inbox and wanted to post.
I am writing to ask for your support in recruiting for an upcoming survey study entitled INSPIRE-Flare: Investigating flare triggers, preventers and prodromes in autoimmune disease patients. This study aims to improve understanding of triggers, preventers and the progression of symptoms in autoimmune disease flares in order to improve recognition and treatment.
Participants must be aged 18 or over and be diagnosed with at least one autoimmune disease. The survey can be completed online via Qualtrics using this link https://bit.ly/4kOQeyg. Participants who cannot access the internet can also arrange to complete the survey via telephone with a member of our study team. Participants will be given the opportunity to win one of four £50 Amazon vouchers. More information about the survey, data storage and ethical approvals can be found in the Participant Information Sheet attached.
If you would like to support us in recruiting participants for this study, please share this message through your communication channels:
FOR ONLINE FORUMS:
Rheumatology and other autoimmune diseases patient survey from the University of Cambridge
This survey asks about how you define flares in your disease, what triggers and prevents flares and the order of symptoms in flares. It should take about 45 minutes to complete, and you can pause or stop at any time.
Everyone who takes part can choose to be entered into a prize draw to win one of four £50 amazon vouchers when the survey closes, which will likely be in early June.
Please click on this link https://bit.ly/4kOQeyg to take part.
If you have any questions, please contact Martha Piper on mp2196@cam.ac.uk or Melanie Sloan on mas229@medschl.cam.ac.uk.
This study is part of the INSPIRE project, which is led by Dr Melanie Sloan, who is a rheumatology patient as well as senior academic. Her team includes senior rheumatologists, Prof David D’Cruz and Dr Arvind Kaul, and is well-known as leading the way in fully involving patients as research partners and changing care through the work they publish. This is only made possible by your involvement is studies such as this.
Please see below for some recent relevant articles they have published with your views and experiences:
Prevalence and identification of neuropsychiatric symptoms in systemic autoimmune rheumatic diseases: an international mixed methods study. https://doi.org/10.1093/rheumatology/kead369
Telemedicine in rheumatology: A mixed methods study exploring acceptability, preferences and experiences among patients and clinicians. https://doi.org/10.1093/rheumatology/keab796
FOR SOCIAL MEDIA:
Get involved in rheumatology research being conducted at the University of Cambridge!
To take part, you need to complete a survey which asks about how you define flares in your disease, what triggers and prevents flares and the order of symptoms in flares. It should take about 45 minutes to complete, and you can pause or stop at any time.
Everyone who takes part can choose to be entered into a prize draw to win one of four £50 amazon vouchers when the survey closes, which will likely be in early June.
Please click on this link https://bit.ly/4kOQeyg to take part.
If you have any questions, please contact Martha Piper on mp2196@cam.ac.uk or Melanie Sloan on mas229@medschl.cam.ac.uk.
Thank you for your time and consideration. We deeply value the opportunity to collaborate with you to ensure that the voices of multiple sclerosis patients are well-represented in this important research.
Long-Term Conditions Group
University of Cambridge
This is very interesting.